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I'm Thankful... Despite it all.

11/22/2019

2 Comments

 
       ​Having a chronic illness is TOUGH! I am currently sitting in this hospital wide awake with a million and one things on my mind. Believe it or not, many things that I do think about are usually the same things that I think about every time I’m locked up in here. I wonder how long I’ll be locked in for, the things I could be doing instead of being stuck in this bed and I think about the food I could be eating; even though I have no appetite this time. Why am I here? To me, it’s too long to explain, so the shortened version is that I have no appetite, I can’t keep food food down, abdomen pain, major fatigue and drastic weight loss in a month. Now when I say “food food”, I’m talking about full blown meals; a meat, a starch, veggies, and desert.
​        Before I really stopped eating, I was eating like a 3 year old and then I started eating only bites of things which lead me to lose almost 50 pounds within a month! Now I know I’m looking all slim thick and what not BUT… I. AM. WORRIED. So after 2 previous ER pull-ups, I finally got admitted so that the “professionals” could take a thorough look at me because I just feel that something is wrong and I hate to feel sick—I know that I’m constantly sick but that’s just called lifetime sick. My bubbly isn’t as authentic as it should be when I feel sick. When I feel good, I’m bubbly, which brings joy to people all over. Sigh. But here I am. 

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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives
    • Lupus Awareness Month
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
    • The 2024 Luxe Derby Event
  • The Survivor's Circle
  • DONATE
    • Volunteer Application