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Change is coming... right?

11/29/2018

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Can you believe how fast this year has gone by? Soon, there will be the "New Year, New Me" saying. Sigh. Within, two months, so much has happened. I honestly feel like my world was turned upside down; but things have started to slow down and settle for a change. Finally, labs are coming back normal, dialysis is going steady, I've been cleared to return to work and things have been looking up. People have asked, "Brie, what happened?" To clear things up, my kidney rejected. How? I have no clue. One day I was fine and days later I'm in the hospital, damn near on my death bed. I laid in the Cleveland Clinic for TWENTY SIX days. And let me be clear, Do I love the Cleveland Clinic? I do. However, going there will ALWAYS be my last choice. I was stuck over 75 times. ​

Fast Forward.... January 23, 2019..
​

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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

Contact Us

  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE