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This Support Group

1/25/2019

2 Comments

 
Well Hey you!

I hope the New Year has been everything that you've wanted it to be so far. If not, I'm not mad because for me, January is just a trial run. February will be the real deal. 

​So one thing that I keep blabbing about but I never seem to get on it with is this support group. Have you ever said that you were going to do this and that with high confidence and motivation but when it's time to get to it, you're like, " I'll do that another day". See! That is me and I will holler  "I'll do that tomorrow" until pigs can fly. 

It's like, I can see the support group in my dreams but I just give up or don't even bother with it when it comes to planning and organizing for real for real. This support group has been on my mind for a while now and I really know it can help many people; with or without Lupus. I want to create an environment for individuals that is a safe space for them to share their concerns, receive comfort, motivation and encouragement. I remember when I first was diagnosed with Lupus, I knew NO ONE that had it and I felt alone. I heard stories of people who had Lupus, but the end was always bad I wanted change that narrative. 


So why the support group? They already have one in the city. 


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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE