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I schooled him...

10/3/2016

1 Comment

 
It's early in the morning and I just had to share what happened when I went to the Cleveland Clinic. So, last week I had to return to the Cleveland Clinic for my last evaluation and some labs and let me tell you; I was tired. I was tired of making that drive and I felt like if I only went to Orlando twice and got listed, why in the world is Cleveland Clinic requiring so much?! It felt like my once judged "bestest hospital" to me was starting to get on my bad side. Doctors were starting to make tardiness their thing and I feel like as a physician, you have to be on time, especially due to the fact that a patient's appointment is cancelled after they are 30 minutes late. ANYWHO, the doctor was running 20 minutes behind but miraculously the nurse came out and got me after my 5 minute wait. checked my weight and other routine labs. So she left and a guy walked in and I'm thinking to myself "buddy you have the wrong room". He was young, about 27 or 28, white color, and I noticed his clothes were VERY tight; including his white jacket signifying he was some type of important person. I thought he was a doctor but he looked so young! He walked in and stated "Good Morning Ms. Salter. My name is Johnathan Micheals and I am a Medical Student here at the Cleveland Clinic. It is always nice to meet a medical student because they are fresh with knowledge and they are so "scientifically speaking" that they lack knowledge logically but that's why I love when they meet me because I always school them, teaching them things they would ONLY learn outside of a classroom and a textbook.

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But God. 

10/2/2016

3 Comments

 

God ALWAYS comes in clutch. 

So, much has happened to the point where I was discouraged, I began to lose focus and I thought I was going to have a nervous breakdown BUT God. God just has an amazing way of getting your attention and making SURE you don't lose focus. School was getting ready to start, Orlando kept saying that they hadn't received certain documents after you sent them over 3 times, Cleveland Clinic had this long process that seem to NEVER end, and Miami just seemed to have an attitude and no type of "customer service" dignity about themselves, and my personal life was just... all over the place. So at a moment I was tired, very tired. So tired to the point where I was about to say forget it and I will just stick with dialysis and I will try it again another time. Most, if not all Lupies have a breakdown AT LEAST every 6 months. I think I feel like I have one everyday but God came in clutch this time missing nothing. When I got that call to be listed I was silent for a moment and then I began to cry. I felt like I could hear God say "all you have to do is trust me and be patient", the SAME thing my daddy would say to me when I wanted a new car. I was overjoyed and very thankful. My body was going through ups and downs and I was sure that it was going to take over a year to be listed but that wasn't in the plan. Due to dialysis I can't get in public water such as public pools, water parks and Jacuzzi. In public places like that, people urine, poop, puke, and even bleed in that water. I love MY life so on that note, I'M STRAIGHT! On top of that I can't soak in my personal tub because sitting water will get in my port and infect it. I can swim but I can be in there long and it has to be my personal pool. Only if I had one. Sounds fun right? I love water and I just can't wait until I get the surgery and I am able to enjoy what I love most. Well now, school has started and it's okay. School is never fun but healthcare fraud is something that I am really interested in. I took my first exam and I received a 100 so you know I was excited and turnt. I finally finished my process with the Cleveland Clinic (which goes before the board soon to determine if I am listed) and I decided that I didn't want to go on with the evaluation process down at Miami. I was told by one doctor of mine that Miami is a "zoo" and honestly, I want no part in that. Sometimes when things go wrong in our eyes we breakdown and feel that nothing is going right and everyone has given up on us but trust me when I say, be patient, because God is getting ready to come in clutch. 
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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE