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Brief Reflection

10/13/2020

Well hello YOU! This year has been crazy but thankfully many of us are still here and able to move about and live another day. Living through a global pandemic is one thing but living through a global pandemic with a chronic illness has been…one of a kind. On New Year’s Eve 2019 as the ball was dropping in Times Square and we all were celebrating the beginning of a new decade, I just knew that 2020 would be special. I knew I would eat right, lose weight, meet that amazing man, expand the LupieGirl, find a new job, and the list just keeps going and going. However, 2020 truly brought the unexpected, for real for real.

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Did You Know?

An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.

My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a Rheumatologist who also confirmed that I had Lupus.

About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

Brief Reflection

Did You Know?

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