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It Aint What it Looks Like

3/12/2018

Since I was told that I needed a kidney transplant, I thought about all of the freedom from hospitals and "bondage" along with having children and so forth. Boy oh Boy, I guess now, I'm facing the true reality. Since the beginning of the new year, I've been hospitalized twice, both about 4-5 days at a time. That's about 10 days that I've been locked up and it's only the beginning of March. Am I mad about it all? Nah. I just want to be "normal".

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Did You Know?

An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.

My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a Rheumatologist who also confirmed that I had Lupus.

About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

It Aint What it Looks Like

Did You Know?

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