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The News!

9/24/2016

1 Comment

 
Well, for a bit I was discouraged to write because of the fact that no one really understood but I realize that people are inspired by what I do and how I have handled my situation thus far SO, I decided to get back to writing, especially because of the fact that I got my computer mailed back to me (Thank you ALI!). So, I know that many have been writing me trying to figure out what was the news and when I was going to spill it. However, I wanted to inform my family and close friends before I posted it on Facebook.
 

Well, (DRUM ROLL),




​ I’VE BEEN LISTED ON THE KIDNEY TRANSPLANT LIST! Yes people! I was listed at Florida Hospital Transplant Institute in Orlando, Florida on September 15, 2016! I am excited and I have do have restrictions. My biggest restriction is that I can gain NO more weight, which is fine because I’m not trying to lose weight anyway. When I got that call, I literally cried because I actually thought that it was going to take years to accomplish that one goal that I felt was so hard to complete. I’ve had Lupus for almost 6 years and it just seems like every year it has gotten worst but I pray that things get better. For years, I’ve been told that I can’t carry a child because of the fact that active Lupus causes the placenta to not form properly. I was told that I was unable to carry children because of my damaged kidneys and I wouldn’t be able to carry until I received a good, healthy kidney.  Now I feel more confident and one day, I just may have that chance to give birth to a beautiful baby girl or boy. In total now, I have lost 50 pounds since January and I really want to lose about 20 more. I have this little black dress that I really want to slip back into so I’m very close. That call has really encouraged me. It reminded me that all the work that I have done has not went in vain. I had to thank God first of course and I want to say THANK YOU to everyone who has encouraged me and motivated me through this process. I have had break down moments where I have cried out to God begging for change. I have had moments where I have questioned myself, wondering if this fight was actually worth it. This journey has been truly rough but I continue to hold my head high and thank God every step of the way. I say that to say this, NEVER give up on the things that you may want to accomplish. It may take weeks, months, or even years but KEEP GOING and accomplish whatever it is that you want to accomplish so bad. Discouragement WILL come your way. However, do NOT allow for that to stop you, that is only a part of the process.

 
1 Comment
Yolanda link
9/24/2016 06:45:26 pm

Congrats... You're amazing and God is in full control. Continually praying for you.

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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE