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Some things that I forgot.

11/16/2016

2 Comments

 
Well, well, well. I know that I supposedly did an update on what happened in October and in the beginning of November but my mind was every where and that is in fact my fault SO (I had to catch my breath because of this run-ON sentence that I just created), here I am AGAIN. Well, October 25, 2016 was my 6th year Lupiversary. A Lupiversary is the "Anniversary" of the day a Lupie was diagnosed with Lupus. So, yes. It was my 6th year Lupiversary and I was so happy and hopeful, and just...thankful. Those who have been with me these past six years KNOW that it has been a STRU-GGLE! However, those who have been with me these last six years know just how hard I've worked, cried, pouted, and even gave up when it comes to Lupus. On that day I had to really get in my prayer closet and thank God because I began to reminisce on all the things that happened which made me sad, happy, and even angry. Many just don't know. In the last six years, Lupus wasn't the only thing that I was going through. I was going through a really rocky relationship, I miscarried, I experienced a horrific breakup, I suffered from depression, I forgot how to love myself, I was lost on life, I was lost with God, I ended up on Dialysis and my life was spiraling out of control. But God. But God allowed me to bounce back like NEVER before and THAT, is what's important. God allowed me to continue to go on and receive my Bachelor's degree. God allowed me to be happy and genuinely love myself. God allowed me to pick myself up EVERY TIME I fell. God allowed me to be a vessel--a healthy vessel--and tell my story, "LOOKING" as if I have been PRIVILEGED ALL MY LIFE. God allowed me to breathe again when the nurse said I wasn't breathing, God allowed me to take showers when for a month I wasn't allowed to. God allowed me to go on and be able to WORK for a Master's Degree in the same field that I was told would be too "high stressed" for me. BUT GOD!  Remember, things happen in our lives for a reason. I always look around at other people and always holler how I want to be "normal" but if I was, The Lupie Girl wouldn't have been born! Lupus may have brought me many lows but she has also brought me many highs. I've met people that I wouldn't have met hadn't I been on this journey. Stay encouraged and stay inspired! 
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4/25/2024 05:18:10 pm

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4/25/2024 05:18:38 pm

"Explorant l'univers de l'huile d'olive sur Oliomobile, où saveurs et savoir-faire se rencontrent!" (Exploring the world of olive oil on Oliomobile, where flavors and expertise converge!)





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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE