The month I've been waiting for is finally here and I've been busy. Really busy actually. I'm just so excited because it's LUPUS AWARENESS MONTH! I advocate so hard not only because I have Lupus but because it's a disease that has no cure and it is NOT TALKED ABOUT ENOUGH. PERIODT!
Shout OUT TO ALL THE LUPIES!!! I hope that during this month you are able to find some type of peace and comfort. I hope you were able to experience at least a day where you felt great! Happy Lupus Awareness Month to you! You are some of the strongest people that I know! Stay encouraged!
Even though medicines have advanced, do you know that there is one medicine (that I know of) used to really "treat" Lupus? Only one. Now there are other medicines I know like Prednisone and Cellcept that are used to help quiet Lupus down a bit but for the most part, THAT'S IT. Having Lupus is tough and frustrating. There are many people who are living with this illness, who, because of Lupus, have something else. For example, due to Lupus, I am on dialysis due to kidney disease…all Lupus fault.
Systemic Lupus is a beast. It can attack any organ at any time, sometimes, without a symptom. Many people with Lupus don't work, putting a strain on their living situation, their families, relationships and other things in their lives. This is why I want to create The LupieGirl, Inc.
I want for The LupieGirl, Inc. to provide mental, as well as financial support to those living with this illness. You all know I am a big education supporter so my organization could not be complete without providing something for education! I also plan to provide scholarships for qualified Lupus Warriors.
Something needs to be created to provide opportunity and hope to Lupies because this journey is very tough. I'll never forget going to vocation rehab (or whatever it's called) *eye roll* and hearing that lady tell me that I couldn't be nurse. I will never forget her telling me to be realistic with my life goals. I will never forget people telling me to stop going to school. All because of Lupus. All of those things really hurt me mentally. However, it has really pushed me to want to be something greater than I ever imagined! Now, I decided to not pursue nursing because I knew the stress but saying I couldn't do isn't true. I want a support group that has both bright and dark times. A moment where we can complain but uplift, encourage and motivate as well.
Even though my family and friends are so supportive sometimes I still feel alone. Even though my loved ones were there during my hardest times, I experienced everything and they watched. There is definitely a difference. When my family left at the end of the night, that’s when my real strength had to kick in. Many people just look at the physical devastation that Lupus causes but never think about the mental. Mental Health is sooooo important. I do suffer from depression. I am working more to control my emotions which one day may be up or down. I am learning to admit when I am not okay because it is okay to not be okay.
Now how am I going to do this? I have NO I D E A—But, I'm excited LOL.
The Lupus Awareness Brunch!
I'm so excited, nervous, anxious, and happy about this event. It's literally about 5 days away! People are buying tickets and it gives me this adrenaline rush! During this process, I've learned so much and I love and hate it! Oh by the way, did you buy your ticket yet?! I would love to see you there!
People always have said, if you want to see change, many times you have to make that first step. So, here I am , making that step on faith. I'm so excited for where the LupieGirl is going and all this love and support feels so...damn...GOOD!
I truly thank all of you for being on this journey with me!
Happy Lupus Awareness Month!!💜
Did You Know?
An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.