It's always something...
So, so much has happened since the last blog, feel like. I was excited to start writing another blog to explain what happened with the Cleveland Clinic when I went but then 3 days later I am sitting in the emergency room, not feeling well, and just wanting to lie and close my eyes. Let's talk about the Cleveland Clinic first. Let me be the one to say it if I haven't before, The Cleveland Clinic is a beautiful hospital. I saw people of every color, religion, ethnicity, ALL THAT!! It was such a beautiful sight and it made me more confident and motivated to lose this weight that I've been yapping about. I went the first day and it was just explaining the process and education session of a kidney transplant. It was prerty short and sweet honestly. However, this last visit was extensive. That visit was much longer. I first saw a lab tech who drew about 20 to 30 tubes of blood. She pulled blood for everything! She probably pulled blood just to make sure I'm black too lol. Who knows. I then met with a social worker who pretty much informs me of everything going on. She is the one who will know me best because I talk to her the most. She asked about my childhood and my goals. We talked about who I'm closest to and where I would go once I received my transplant. I met with a dietician who lectured me about certain foods to eat. I was excited because I made it down to 195 from the 240 pounds that I was in January. She explained that my BMI was in range for their kidney transplant program. Excited, I met with the pharmacist who informed me about the medications I would take once I received the transplant. It was about 6 medicines on that list and 2 that were on the list including one I already take will be the 3 I will take for the rest of my life. The other 4 are temporary. I been taking many medications since I started this journey so I'm pretty used to the whole "prescription drug life" thing. I've always said, I'm a part pharmacist and physician by experience. Lol. I then met with a financial counselor who explained that there are things that I may need to pay for like medication that has a total of $4,000.00 alone! I was told that in the event that I have to stay in Ft. Lauderdale after my surgery, I have to fit the bill. I'm a water bag and the tears trickled down my face. NEVER in a million years would I have imagined that I would be in this clinic because my life depended on it. Never in a million years did I think that I would suffer from a condition that I could eventually die from. Not in a million years did I ever think or have to think of ways to fundraise to raise money for a new organ and all the outside costs such as travel, lodging, food and medicines. Most of my life I may been have been big but I was always healthy. Never was I the hospital or sick. I won't sit here and lie and sat it's been a walk in the park because it hasn't. Everytime I turn around it is something. While at the Cleveland Clinic, I felt very very sick. I had shortness of breath, an upset stomach, dizziness, and a loss of appetite. All I wanted to do was lay down. However, I didn't want to miss my appointment with Cleveland Clinic so I went anyway and thank God that my stepmommy, Din Din, was able to go with me. I probably wouldn't have been able to make it. I still have 2 more visits with them so I pray all goes well.
Now here I am, in the hospital. Sigh. On Monday I still felt horrible and felt that something was just not right. I couldn't even walk through my little hut with feeling like I wanted to pass out. So, I called my PD (peritoneal dialysis) nurse and explained the symptoms I was having. She instructed me to go to the ER and she would meet me there. I got there and they hooked me all up and there she was, checking on me asking me questions. She said would call my nephrologist and see if I would be kept or not. An hour later, the ER physician and Admitting physician came in and informed that I would be admitted into the hospital. Everything was out of wack and my kidneys were so bad that it scared them. So, I was admitted.
Did You Know?
An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.