THE LUPIEGIRL, INC.
  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE

Change is coming... right?

11/29/2018

4 Comments

 
Picture
Can you believe how fast this year has gone by? Soon, there will be the "New Year, New Me" saying. Sigh. Within, two months, so much has happened. I honestly feel like my world was turned upside down; but things have started to slow down and settle for a change. Finally, labs are coming back normal, dialysis is going steady, I've been cleared to return to work and things have been looking up. People have asked, "Brie, what happened?" To clear things up, my kidney rejected. How? I have no clue. One day I was fine and days later I'm in the hospital, damn near on my death bed. I laid in the Cleveland Clinic for TWENTY SIX days. And let me be clear, Do I love the Cleveland Clinic? I do. However, going there will ALWAYS be my last choice. I was stuck over 75 times. ​

Fast Forward.... January 23, 2019..
​
So I started writing this blog post way in November and then suddenly gave up, just like that. But I decided to pick it up and get back to it.  For the last few months, my emotions have been in the pits. After those 26 days that I stressed about spending in the Cleveland Clinic, I was actually admitted to the hospital 3 or 4 times after that. I kept getting infections and my incision where Bobby was removed continuously had issues. I feel a crap load of emotions and I decided to fall back off social media a little bit. Honestly, this whole Kidney/Dialysis/Lupus ordeal has made me bitter as hell. Maybe just angry as hell can be a better way to put it. But what do I do? I pray right? I continuously motivate and encourage myself right? But what do you do when you've done that and you grow tired? What happens when you decide that this is what you no longer want to deal with? Not only did I have issues where Bobby was located but I also had developed ANOTHER blood clot in my lung. Also, I had been out of work for TWO MONTHS and time was running low. I needed to get back to work but my body would not bounce back. As much as my family and friends tried to comfort me, I was SCRESSED! Then finally, I was out the hospital and I was doing okay. I got to spend Thanksgiving, Christmas and New Years out as a free woman but soon after New Years, I got locked up again. I wasn't so upset because I did have a beautiful room that had a somewhat patio or little Florida room where I could see the water. That was a bit soothing. 

After hearing it over and over, I decided to see a therapist and I must say that I LOVE HER!!! Her energy is bright and that is definitely what I need. Imagine, dealing with no appetite and having this "gaggy" feeling constantly, then stomach pains from not having an appetite, still having to go to work to keep benefits and make money, having to sit in dialysis 3 days a week for 3 and half hours each time, trying to keep up with your social life and professional development life, deal with joint pain and major headaches at night and still be the bubbly person that I am. How do I do it? God is all I can say because BBAAABBBY!!! 

Despite it all, I am strong. I am phenomenal! I am Great! I know that with all this that is going on, I know a big big blessing is coming my way! I've been close to death many times and each time God saved me and brought me here for a purpose. Is it my purpose to keep the LupieGirl going? Is it to inspire, motivate and encourage those with chronic illnesses? I guess I have to wait see the wonderful things God has in store for me! I am working hard to remember that despite what is happening right now, change is going to come. 
​
4 Comments
Your WOE!
1/23/2019 06:39:16 pm

At this very moment as I read this... My eyes are filled with tears!😭 although I can't relate physically, I can mentally and I must say that I needed to read this...Never stop Brie and keep being true to you no matter what because whenever I think about giving up I remember you and your journey.

Reply
sumber link
7/2/2023 06:27:10 pm

Hi thhanks for sharing this

Reply
tutuapp link
4/15/2024 05:58:57 am

As of my last knowledge update in September 2021, the Greek national football team won the UEFA European Championship in the year 2004. They achieved this historic victory by defeating Portugal 1-0 in the final held on July 4, 2004, in Lisbon, Portugal.





Reply
kodi link
4/15/2024 05:59:30 am

The fruit of keyboard enthusiasts, often metaphorically referred to, is "Keycaps." Keyboard enthusiasts often customize their mechanical keyboards by replacing keycaps with different colors, designs, and materials to enhance the aesthetic and tactile experience of typing. This practice is known as keycap customization or "keycap sets," and it's a popular aspect of the mechanical keyboard hobby.





Reply



Leave a Reply.

    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

    Archives

    October 2020
    April 2020
    January 2020
    November 2019
    August 2019
    June 2019
    May 2019
    April 2019
    February 2019
    January 2019
    November 2018
    September 2018
    March 2018
    November 2017
    March 2017
    February 2017
    January 2017
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016

    Categories

    All

    RSS Feed

SEARCH OUR SITE

About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

Contact Us

  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE