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3 months in...

3/8/2017

3 Comments

 
Well, yesterday, March 7, 2017 made 3 months since I received my kidney transplant. I had to drive down to Weston, Florida and meet up with my Transplant Nurse and the physician to check vitals and make sure that the kidney was pumping fine with no increased risk of rejection. I also had to pick up the 6 or 7 different medications that I needed refills on. All vitals came back normal and all I could say was "Lord, thank you." Since the transplant, so much has taken place and so many blessings have come my way. Not running around with Henry all the time has in fact made things way much easier. No more having to take boxes and boxes of dialysis fluid when I travel. I no longer have that tube hanging from my abdomen. However, I have still had moments when I'm down due to the fact that there is a 40% chance that I can get kidney disease again. Everyday I see the scares and bruises that my body has endured, especially within the last year. I don't always ponder on the negative but I don't act like they aren't there. I will say that it is my negatives and my memories of those times that push me the hardest to get better, to succeed and to continue writing sharing the things that I've gone through. I'm on a new list of medications with a few that I will take forever. The LupieGirl grew not only because it's what I wanted to do, it was really because of those who believed in me and wanted to see me grow and God telling me to make everyone aware of this devastating disease that is claiming the lives of many people everyday.

For everyone that has Lupus or has some chronic illness, or know someone suffering from it, pray. Pray for that day when things may change. Stay encouraged and have a team of people that will stand in the gap for you when you have no strength or zeal to pray for yourself. My village and God is who kept me through this entire process. A while ago, I almost lost my mind and gave up. However, my village; family, friends, church members, friends of friends; continuously prayed for me and encouraged me. Outside of Lupus, I dealt with other issues that many people may face. I was slapped with the cold reality that I may not be able to do the one thing that women are blessed to do; have children. All I can say now is BUT GOD! I remember sitting in my room in the dark, crying out, begging for change. Sometimes, I would just cry and say nothing. One thing I will always say is God, thank you. I won't only thank him for all the things he has done for me but for also going through this and living to tell the story. I thank him for this experience, humbling me to see what it's like when people walk out on you, when people take from you, when you constantly pray and it doesn't come on your own time and the very fact that when God comes through, he comes all the way through, when you LEAST expect it! I was supposed to be talking about the different medications that I take right now and the things I can and can't do. However, my heart shifted me in a different direction and I pray that you all stay encouraged and enduring whatever fight it is that you're fighting. Please know, just because I have received a kidney transplant, the fight for me is NOT over. I will still suffer from Lupus for the rest of my life. 
3 Comments
Gerderia
9/24/2017 11:56:43 am

Hi, your faith is so strong and l love to read these and that you are fighting and never giving up. I also love your encouraging words in paragraph 2 to those that may know someone going through this and how you got through!!!

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tutuapp link
4/15/2024 06:00:58 am

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    Did You Know?

     ​​An estimated 1.5 million Americans and 5 million people worldwide are living with lupus.

    Factors that may trigger a lupus flare include infections, ultraviolet light, stress, some medications, environment with some still unknown.


    My first sign of Lupus is when I woke up one morning with The malar, or “butterfly” rash on one side of my face. Over a week span, it spread across my nose, elbows, arms and even my eyelids! I went and saw a dermatologist  who did a biopsy of the rash and my ANA came back positive, confirming that I had Lupus. I also went to a  Rheumatologist who also confirmed that I had Lupus.  

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About the LupieGirl

Lupus is a devastating disease that still is not discussed enough and many times misunderstood. We have to advocate past Lupus Awareness month and bring attention to this illness year round. Individuals are dying from complications of this illness and to date, no cure has been found for Lupus. In the meantime, The LupieGirl will continue to motivate, encourage and inspire Lupies to live their best lives, debunking the stigma of what "sick" looks like, as well as accomplishing their wishes and goals.

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  • Home
  • The LupieGirl, Inc.
    • The Journey
  • TLG Initiatives & Events
    • 2024 Lupus Awareness Month
    • 2024 Lupus Awareness Brunch
    • Lupie CareKit Drive >
      • Lupie CareKit Giveaway
  • The Survivor's Circle
  • 2024 Board of Directors Application
  • Volunteer Application
  • DONATE